Comments on: My Mummy’s Updates !! http://ourlittlemiracle.info/2007/03/13/hello-world/ Our Little Miracle, Tyler White born June 5, 2003. Tyler is a primordial dwarf, MOPD Type 2. Tue, 06 Jan 2009 18:36:11 +0000 http://wordpress.org/?v=2.1.2 By: Karis http://ourlittlemiracle.info/2007/03/13/hello-world/#comment-8 Karis Fri, 16 Mar 2007 23:54:13 +0000 http://ourlittlemiracle.info/2007/03/13/hello-world/#comment-8 Thought i would write in this bit too. I never realised the extent of all of this..... Im sooo proud of u and marv...ur great parents....its made me cry! I've shown all my friends this website to show off my nephew....lol xxxxxxxxxx Thought i would write in this bit too. I never realised the extent of all of this…..
Im sooo proud of u and marv…ur great parents….its made me cry! I’ve shown all my friends this website to show off my nephew….lol xxxxxxxxxx

]]> By: Nicola ( Tylers mum) http://ourlittlemiracle.info/2007/03/13/hello-world/#comment-10 Nicola ( Tylers mum) Sat, 17 Mar 2007 12:14:22 +0000 http://ourlittlemiracle.info/2007/03/13/hello-world/#comment-10 Thank you to everyone so far for your lovely comments!!! So i thought i will do my updates here Just to let you know Tyler had a MRI & Cat Scan under general anesthetic Thursday for Brian aneurysms as this is one of the biggest killers in M.O.P.D Tyler has to go through this every six months this does not say that one will happen in between the six month gap but no child can go through a General Anesthetic every day. I have to think in my mind that every six months is enough time to pick something up in time - Or else i will never get to enjoy Tyler's life as me and Marv ( Tyler's Dad) feel like we completely miss out on the pregnancy and when he was first born due to all the medical intervention and the trauma for all three of us getting Tyler into the world!! So we have to wait 7 -10 working days now for the results from Ty's peads Dr she is great and will phone right away with results. This is important for you to know ** IF TY HAD ANYTHING FLAGGED AS LIFE THREATING ON THE MRI & CT TY WOULD HAVE NOT BEEN SENT HOME TO WAIT FOR HIS RESULTS HE WOULD HAVE BEEN TAKEN IN TO HOSPITAL RIGHT AWAY** Tyler has had one MRI since we have lived in Canada there where some abnormalities but the important thing to remember its nothing that will end his life early that's all that matters to us. He is a happy lovely active social boy who love everyone and the world and this is the important thing. Don't know if i had mentioned before Tyler is 4 years old in June and until last week i could not find any other mum with children with M.O.P.D well this week i am now in contact with 4 mums with children with the same condition - everyone meets up in June in America so this is our big mission to make sure we get there its important for Tyler we think and us too. So i need to renew my British passport and save like mad!! Thank you again for your comments If you leave any messages i will be responding to everyone Nicola xx Thank you to everyone so far for your lovely comments!!!

So i thought i will do my updates here
Just to let you know Tyler had a MRI & Cat Scan under general anesthetic Thursday for Brian aneurysms as this is one of the biggest killers in M.O.P.D Tyler has to go through this every six months this does not say that one will happen in between the six month gap but no child can go through a General Anesthetic every day. I have to think in my mind that every six months is enough time to pick something up in time - Or else i will never get to enjoy Tyler’s life as me and Marv ( Tyler’s Dad) feel like we completely miss out on the pregnancy and when he was first born due to all the medical intervention and the trauma for all three of us getting Tyler into the world!!

So we have to wait 7 -10 working days now for the results from Ty’s peads Dr she is great and will phone right away with results.

This is important for you to know
** IF TY HAD ANYTHING FLAGGED AS LIFE THREATING ON THE MRI & CT TY WOULD HAVE NOT BEEN SENT HOME TO WAIT FOR HIS RESULTS HE WOULD HAVE BEEN TAKEN IN TO HOSPITAL RIGHT AWAY**

Tyler has had one MRI since we have lived in Canada there where some abnormalities but the important thing to remember its nothing that will end his life early that’s all that matters to us. He is a happy lovely active social boy who love everyone and the world and this is the important thing.

Don’t know if i had mentioned before Tyler is 4 years old in June and until last week i could not find any other mum with children with M.O.P.D well this week i am now in contact with 4 mums with children with the same condition - everyone meets up in June in America so this is our big mission to make sure we get there its important for Tyler we think and us too.

So i need to renew my British passport and save like mad!!

Thank you again for your comments

If you leave any messages i will be responding to everyone

Nicola xx

]]> By: Aileen http://ourlittlemiracle.info/2007/03/13/hello-world/#comment-18 Aileen Fri, 23 Mar 2007 13:13:16 +0000 http://ourlittlemiracle.info/2007/03/13/hello-world/#comment-18 Tyler is a very Special boy and has so much love to give and brings so much happiness to you and his family. I also know that the extent of your unconditional love for him holds no boundary. So in my view you are all very special and hold a very big portion of my heart. I am very proud of you Nicola, may God Bless You and Watch over you All Love Aileen XXX Tyler is a very Special boy and has so much love to give and brings so much happiness to you and his family. I also know that the extent of your unconditional love for him holds no boundary. So in my view you are all very special and hold a very big portion of my heart. I am very proud of you Nicola, may God Bless You and Watch over you All
Love
Aileen
XXX

]]> By: Gina Dearing http://ourlittlemiracle.info/2007/03/13/hello-world/#comment-19 Gina Dearing Fri, 23 Mar 2007 18:17:43 +0000 http://ourlittlemiracle.info/2007/03/13/hello-world/#comment-19 Well done for your beautiful website Nic, We really miss you all loads and reading your website has bought back all the memories of finding out you were pregnant and all that happened after. Remember when you called me when you were at the med centre and I shot up there. I couldn't believe they were saying you were pregnant after all that happened with your cysts and them telling you, you wouldn't be able to have kids. And when you went to the hospital and we were waiting for ages for you to have a scan. I was like an expecting Dad pacing the floor! I kept getting really angry, remember when they just kept saying we have to wait for someone to come over, and there was a scanner right in front of us. Remember me saying 'how can you keep someone waiting for confirmation of something they have been desparate to happen for a very long time, never mind the fact you thought you couldn't have any kids'. I was gutted when I had to leave you on your own as I had to pick my kids up. It was brilliant news when we found out you was. All my family got involved in it too. My mum kept ringing to see if you were ok. Then when you phoned and told me that dreadful news that they said he was dying! I cried my eyes out! When you came back and came to see me at the twins group I was dreading seeing you as I didn't know what to say to you. I just gave you a big hug and said I was sorry, but it was so typical of you, you never even flinched, 'He's going to be ok, we are not giving up' . It was really hard when you went into hospital in Oxford to get to see you, but it was ace when you bought Ty home, he was so precious. I loved babysitting him that night when you went out. Remember when he used to make those really loud laughing noises when you tickled him, it used to bring tears to my eyes. It was horrible when you moved away and we sorted of drifted then. I know our lives took different paths but I will always be your friend and love you all dearly. Hopefully one day we will see each other again, Once again well done, be proud of yourselves, with much love and best wishes, Gina, Matt, Liam and your Goddaughters Isobel & Imogen xxx Well done for your beautiful website Nic,
We really miss you all loads and reading your website has bought back all the memories of finding out you were pregnant and all that happened after.
Remember when you called me when you were at the med centre and I shot up there. I couldn’t believe they were saying you were pregnant after all that happened with your cysts and them telling you, you wouldn’t be able to have kids. And when you went to the hospital and we were waiting for ages for you to have a scan. I was like an expecting Dad pacing the floor! I kept getting really angry, remember when they just kept saying we have to wait for someone to come over, and there was a scanner right in front of us.
Remember me saying ‘how can you keep someone waiting for confirmation of something they have been desparate to happen for a very long time, never mind the fact you thought you couldn’t have any kids’. I was gutted when I had to leave you on your own as I had to pick my kids up.
It was brilliant news when we found out you was. All my family got involved in it too. My mum kept ringing to see if you were ok.
Then when you phoned and told me that dreadful news that they said he was dying! I cried my eyes out!
When you came back and came to see me at the twins group I was dreading seeing you as I didn’t know what to say to you. I just gave you a big hug and said I was sorry, but it was so typical of you, you never even flinched, ‘He’s going to be ok, we are not giving up’ .
It was really hard when you went into hospital in Oxford to get to see you, but it was ace when you bought Ty home, he was so precious. I loved babysitting him that night when you went out.
Remember when he used to make those really loud laughing noises when you tickled him, it used to bring tears to my eyes.
It was horrible when you moved away and we sorted of drifted then. I know our lives took different paths but I will always be your friend and love you all dearly. Hopefully one day we will see each other again,
Once again well done, be proud of yourselves, with much love and best wishes,

Gina, Matt, Liam and your Goddaughters Isobel & Imogen xxx

]]> By: Sarah http://ourlittlemiracle.info/2007/03/13/hello-world/#comment-26 Sarah Mon, 26 Mar 2007 05:23:52 +0000 http://ourlittlemiracle.info/2007/03/13/hello-world/#comment-26 GET THE KID A DOG!!!!!!, its funny to say but you will learn more about him when he is in control of a situation than you will ever learn in any other situation you put him in. When something is his, and this is true for any kid, you see their true ruling confidence and a reflection of your parenting which is interesting to watch! GET THE KID A DOG!!!!!!, its funny to say but you will learn more about him when he is in control of a situation than you will ever learn in any other situation you put him in. When something is his, and this is true for any kid, you see their true ruling confidence and a reflection of your parenting which is interesting to watch!

]]> By: Nicola http://ourlittlemiracle.info/2007/03/13/hello-world/#comment-44 Nicola Wed, 28 Mar 2007 23:02:06 +0000 http://ourlittlemiracle.info/2007/03/13/hello-world/#comment-44 Hello, This is a huge thank you to a special person her name is Karen Melnick and she is the author of a children's organizer set this starts from pregnancy and then Carry's through childhood. I wish i knew about these when my best friend gave birth to her baby girl " Sophie" In January I would have bought one that's no lie there fantastic!! Its got pages for Medication,pregnancy - scans,appointments,labour ect... In the big binder it has tabs and stickers included with all specialists you could think of - For us this is a HUGE help like you couldn't imagine i HAD all paper work laying all around the house that needed a safe clean place - More so now we are trying to get together money to go to America where Tyler will be finally given the chance to see a doctor who knows the ins and outs of Tyler's condition and not sit there and tell us to our faces " SORRY I DON'T KNOW WHAT TO DO" Back to the subject at hand .......Sorry !! So yes i can take everything in one binder and present it to the doctor instead of loads of different bits of paper. I must say for the way i have made it sound which is from my point of view it sounds like this set is for parents with children with special needs if you think that you couldn't be more wrong. That's what i like about this set its made for everyone and with Tyler its hard to fit in to that group!! So anyway please visit her site its really nice I have added it to my fav links " THANK YOU KAREN " Nicola ( Tyler's Mum) Hello,

This is a huge thank you to a special person her name is Karen Melnick and she is the author of a children’s organizer set this starts from pregnancy and then Carry’s through childhood.

I wish i knew about these when my best friend gave birth to her baby girl ” Sophie” In January I would have bought one that’s no lie there fantastic!!

Its got pages for Medication,pregnancy - scans,appointments,labour ect…

In the big binder it has tabs and stickers included with all specialists you could think of - For us this is a HUGE help like you couldn’t imagine i HAD all paper work laying all around the house that needed a safe clean place - More so now we are trying to get together money to go to America where Tyler will be finally given the chance to see a doctor who knows the ins and outs of Tyler’s condition and not sit there and tell us to our faces ” SORRY I DON’T KNOW WHAT TO DO”

Back to the subject at hand …….Sorry !!

So yes i can take everything in one binder and present it to the doctor instead of loads of different bits of paper.

I must say for the way i have made it sound which is from my point of view it sounds like this set is for parents with children with special needs if you think that you couldn’t be more wrong. That’s what i like about this set its made for everyone and with Tyler its hard to fit in to that group!!

So anyway please visit her site its really nice
I have added it to my fav links

” THANK YOU KAREN ”
Nicola ( Tyler’s Mum)

]]> By: Nicola http://ourlittlemiracle.info/2007/03/13/hello-world/#comment-54 Nicola Fri, 30 Mar 2007 12:55:29 +0000 http://ourlittlemiracle.info/2007/03/13/hello-world/#comment-54 Just needed to get this off my chest!! Yesterday me and Tyler where in the car - I was waiting at the traffic lights waiting for the lights to change. When i see this a Neonatal Ambulance well i just started crying, It most likely didn't help that i was listening to slow sad music!! But for any parent who has gone through the hospital transfer after there baby has been born - You will know what I'm talking about and this feeling i guess stays with you for quite sometime if not for a lifetime!! I remember every detail of Tyler being Transferred from Oxford John Radcliff to Swindon hospital - Its a huge stress on your baby the whole move and Tyler was still in the one pound stage the higher side but i was just so scared he couldn't handle the move. I was very wrong of course. But these little fighter babies NEVER DOUBT THEM !! So someone in Calgary had that hard day yesterday moving her baby from hospital to hospital. And i am thinking of them even though i don't know you. Nicola ( Tyler's Mum) xx Just needed to get this off my chest!!

Yesterday me and Tyler where in the car - I was waiting at the traffic lights waiting for the lights to change. When i see this a Neonatal Ambulance well i just started crying, It most likely didn’t help that i was listening to slow sad music!!

But for any parent who has gone through the hospital transfer after there baby has been born - You will know what I’m talking about and this feeling i guess stays with you for quite sometime if not for a lifetime!!

I remember every detail of Tyler being Transferred from Oxford John Radcliff to Swindon hospital - Its a huge stress on your baby the whole move and Tyler was still in the one pound stage the higher side but i was just so scared he couldn’t handle the move. I was very wrong of course. But these little fighter babies NEVER DOUBT THEM !!

So someone in Calgary had that hard day yesterday moving her baby from hospital to hospital. And i am thinking of them even though i don’t know you.

Nicola ( Tyler’s Mum) xx

]]> By: Richard and Sylvia Yoder http://ourlittlemiracle.info/2007/03/13/hello-world/#comment-195 Richard and Sylvia Yoder Sat, 14 Apr 2007 02:34:56 +0000 http://ourlittlemiracle.info/2007/03/13/hello-world/#comment-195 Greetings from Pennsylvania! Our daughter is Elizabeth Hale, who is the mother of two, Faith, 10 and Chloe, 5. Chloe is a MOPDII child and is one terrific girl. She is so full of energy, she makes us, her Mom-Mom and Pop-Pop, tired chasing after her. She is quite self-suffient and will let you know to "let me do it myself". Our hope for you is that you will get to the convention in Seattle this June and meet her and Elizabeth. They are two exciting people to know. Just know you are not alone. There are many of us who have just learned of Primordial Dwarfism and are very interested in helping these children lead "normal" lives. They are precious, everyone of them. May God richly bless you and your beautiful family. Blessings, Dick and Sylvia Greetings from Pennsylvania! Our daughter is Elizabeth Hale, who is the mother of two, Faith, 10 and Chloe, 5. Chloe is a MOPDII child and is one terrific girl. She is so full of energy, she makes us, her Mom-Mom and Pop-Pop, tired chasing after her. She is quite self-suffient and will let you know to “let me do it myself”. Our hope for you is that you will get to the convention in Seattle this June and meet her and Elizabeth. They are two exciting people to know. Just know you are not alone. There are many of us who have just learned of Primordial Dwarfism and are very interested in helping these children lead “normal” lives. They are precious, everyone of them. May God richly bless you and your beautiful family.
Blessings, Dick and Sylvia

]]> By: deanna http://ourlittlemiracle.info/2007/03/13/hello-world/#comment-32984 deanna Mon, 14 Apr 2008 16:28:42 +0000 http://ourlittlemiracle.info/2007/03/13/hello-world/#comment-32984 heyyah my name is deanna and i read about the story and i think your lilttle boy is amsing just to say and she looks so sweet in the pictures heyyah my name is deanna and i read about the story and i think your lilttle boy is amsing just to say and she looks so sweet in the pictures

]]>